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Introducing biospecimen science to communities: Tools from two cities

  • Cathy D. Meade
  • , Elisa M. Rodriguez
  • , Mariana Arevalo
  • , John S. Luque
  • , Narseary Harris
  • , Gloria San Miguel
  • , Clement K. Gwede
  • , Deborah O. Erwin
  • Moffitt Cancer Center
  • University of Texas Health Science Center at Houston
  • Medical University of South Carolina
  • Prince of Peace Temple of Church of God in Christ (C.O.G.I.C.) and First Ladies of Western New York (FLOW)
  • GuideWell Health
  • Roswell Park Cancer Institute

Research output: Contribution to journalArticlepeer-review

10 Scopus citations

Abstract

Background: This article describes community-engaged processes employed by two Community Network Program Center (CNPC) sites located in Tampa, Florida, and Buffalo, New York, toward the development of Spanish/English educational products about biobanking and biospecimen research. Methods: Each CNPC carried out a community-based participatory research (CBPR) approach that underscored six essential components that moved concepts to a final educational product in a highly participatory fashion. The similar CBPR processes at the two locations focused on the same topic, resulted in different engagement approaches and tools for their respective communities: 1) DVD and brochure toolkit and 2) PowerPoint, group program with audience response system (ARS). Results: We detail a comparison of methods and applications for using these tools among diverse community groups to advance understandings about genetic and biomedical research technologies. Conclusion: Ultimately, these tools and associated educational efforts emphasize the critical value of co-learning among academic and community members in biobanking and biospecimen research.

Original languageEnglish
Pages (from-to)51-59
Number of pages9
JournalProgress in Community Health Partnerships: Research, Education, and Action
Volume9
DOIs
StatePublished - Jul 24 2015

Keywords

  • Community health partnerships
  • Community-based participatory research
  • Health disparities
  • Health promotion
  • Vulnerable populations

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