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Outcome Predictors in Progressive Multifocal Leukoencephalopathy Associated With Multiple Sclerosis Treatments: A Multicenter Cohort Study

  • CORPUS and Italian PML study groups
  • University of Lausanne
  • Regional Multiple Sclerosis Center
  • Ruhr University Bochum
  • Centre Hospitalier Régional Universitaire de Tours
  • Alfried Krupp von Bohlen und Halbach Hospital
  • Heinrich Heine University Düsseldorf
  • Hospital de Bellvitge
  • Tohoku University
  • Groupe hospitalier Pellegrin
  • Centre Hospitalier Régional d'Orléans
  • Papa Giovanni XXIII Hospital
  • Aristotle University of Thessaloniki
  • Hospital Universitario San Cecilio
  • University of Zurich
  • University of Basel
  • Neuro-Dol
  • CHU de Toulouse
  • Nantes Université
  • CHU de Nice
  • University of Münster

Research output: Contribution to journalArticlepeer-review

Abstract

BACKGROUND AND OBJECTIVES: JC virus (JCV) reactivation causing progressive multifocal leukoencephalopathy (PML) is a complication in patients with multiple sclerosis (MS) treated with disease-modifying therapies (DMTs). Although natalizumab (NTZ) is most frequently involved, PML also occurs less commonly with sphingosine-1-phosphate receptor modulators (S1P-RM), dimethyl fumarate (DMF), and ocrelizumab. This study aimed to identify factors predicting worse outcomes, focusing on the influence of PML-immune reconstitution inflammatory syndrome (PML-IRIS), plasma exchange (PlEx), corticosteroids, and DMT reintroduction. METHODS: This retrospective multicenter cohort study analyzed patients with MS who had JCV-associated pathology (PML or granule cell neuronopathy) from 42 centers (2009-2022). The primary outcome was disability at 12 months, measured by the modified Rankin Scale (mRS). Multivariable analyses identified predictors of poor outcomes, PML-IRIS development, and recurrent MS activity. RESULTS: Of 96 identified patients, 94 were analyzed. Most cases occurred under NTZ (77%), followed by S1P-RM (22%) and DMF (1%). Twelve-month survival was 91.5%, with a median mRS of 3 [IQR: 2-4]. Multivariable analysis showed that higher pre-PML disability (OR: 1.95 [95% CI 1.46-2.60], p < 0.001), elevated CSF JCV viral load (OR: 2.45 [95% CI 1.55-3.87], p < 0.001), and symptomatic presentation at onset (OR: 3.93 [95% CI 1.23-12.55], p = 0.021) were associated with worse outcomes. Conversely, PML-IRIS was associated with better outcomes (OR: 0.28 [95% CI 0.09-0.86], p = 0.025). PlEx and corticosteroid use had no negative effect. DISCUSSION: This study provides valuable insights into the management of iatrogenic PML in patients with MS. The findings may guide clinicians in making informed decisions, particularly regarding the use of PlEx, corticosteroids, and the management of PML-IRIS.

Original languageEnglish
Pages (from-to)e200558
JournalNeurology: Neuroimmunology and NeuroInflammation
Volume13
Issue number3
DOIs
StatePublished - May 1 2026

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